[tri-wings] Re: TRIS - Megs

hi
my babys name is kameran hayes
trisomy was t1
birthday 27th june 2000
angel day was 5th june 2000
and i suppose email would be great way ir doing it as i am in australia



 carne@xxxxxxxxxxxxxx is oyr email address
thanks megs
----- Original Message ----- 
From: "Fawna" <fawna33@xxxxxxxxxxxxxx>
To: <tri-wings@xxxxxxxxxxxxx>
Sent: Thursday, April 27, 2006 4:12 AM
Subject: [tri-wings] Re: TRIS - Megs


> >ill do one as well if u like
>
> Thank you Megs,
>
> I'm afraid I'm going to need more information from you though, as I'm
> not at all familiar with your child's dx, etc.  I have your name and 
> e-mail
> addy, so I guess this is what I need to know to register your family in
> the project.
>
> Child's Name:
> Trisomy Diagnosis:
> Birth Date:
> Angel Date:
>
> And which survey format would you like?
>
> By snail mail: With prepaid return envelope (we'll need your mailing
> address off list please at fawna33@xxxxxxxxxxxxxx please).
>
> Or by computer:
>
> PDF file that you print out, fill in, and snail mail back.
>
> Or a Word Document attachment that you save to your computer,
> fill in, and then send back as an e-mail attachment.
>
> Fawna, mom to Philina 23 yrs (PT6p & Moya Moya Syndrome)
> Research Coordinator: Tracking Rare Incidence Syndromes
> (TRIS) project - We are currently enrolling all varieties of
> Trisomy 13 & 18, living & deceased, for the pilot phase.
> To include your child's data and help update the medical
> literature please see: http://web.coehs.siu.edu/Grants/TRIS/
> And to add a link for your Trisomy child's personal web page
> please see: http://www.livingwithtrisomy.org/
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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