[tri-wings] Re: TRIS - Atousa
- From: Fawna <fawna33@xxxxxxxxxxxxxx>
- To: tri-wings@xxxxxxxxxxxxx
- Date: Wed, 26 Apr 2006 16:05:25 -0400 (EDT)
>I'll try the Word format, if for some reason I can't figure it out I'll
>snail mail it to you.
Thanks Atousa,
I'll get this info off to our student helper Michelle.
Fawna, mom to Philina 23 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes
(TRIS) project - We are currently enrolling all varieties of
Trisomy 13 & 18, living & deceased, for the pilot phase.
To include your child's data and help update the medical
literature please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page
please see: http://www.livingwithtrisomy.org/
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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