[tri-wings] Re: TRIS - Atousa

ill do one as well if u like 

----- Original Message ----- 
From: "Fawna" <fawna33@xxxxxxxxxxxxxx>
To: <tri-wings@xxxxxxxxxxxxx>
Sent: Wednesday, April 26, 2006 4:58 AM
Subject: [tri-wings] Re: TRIS - Atousa


> >Fawna, Do you still need people to fill out surveys?  
>>if so you can send me one.
> 
> Thanks Atousa, 
> 
> Which survey format would you like?
> 
> By snail mail: With prepaid return envelope (we'll need your mailing 
> address off list at fawna33@xxxxxxxxxxxxxx please).
> 
> Or by computer:
> 
> PDF file that you print out, fill in, and snail mail back. 
> 
> Or a Word Document attachment that you save to your computer, 
> fill in, and then send back as an e-mail attachment.
> 
> 
> 
> 
> Fawna, mom to Philina 23 yrs (PT6p & Moya Moya Syndrome)
> Research Coordinator: Tracking Rare Incidence Syndromes 
> (TRIS) project - We are currently enrolling all varieties of 
> Trisomy 13 & 18, living & deceased, for the pilot phase.  
> To include your child's data and help update the medical 
> literature please see: http://web.coehs.siu.edu/Grants/TRIS/
> And to add a link for your Trisomy child's personal web page 
> please see: http://www.livingwithtrisomy.org/
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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