[tri-wings] Re: TRIS - Atousa

>Fawna, Do you still need people to fill out surveys?  
>if so you can send me one.

Thanks Atousa, 

Which survey format would you like?

By snail mail: With prepaid return envelope (we'll need your mailing 
address off list at fawna33@xxxxxxxxxxxxxx please).

Or by computer:

PDF file that you print out, fill in, and snail mail back. 

Or a Word Document attachment that you save to your computer, 
fill in, and then send back as an e-mail attachment.




Fawna, mom to Philina 23 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes 
(TRIS) project - We are currently enrolling all varieties of 
Trisomy 13 & 18, living & deceased, for the pilot phase.  
To include your child's data and help update the medical 
literature please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page 
please see: http://www.livingwithtrisomy.org/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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