[tri-wings] TRACKING RARE INCIDENCE SYNDROMES UPDATE

From: "Erin Maurer" <ekmaurer3@xxxxxxxxxxx>
To: <tri-wings@xxxxxxxxxxxxx>
Date: Fri, 16 Mar 2007 10:35:51 -0700

Fawna,
Can you get in touch with the ladies on the trisomy 18 foundation.  They
would probably post something for you there and then you can get more peole
with t-18.  I would post it, but they have strict rules about posting
websites and stuff like this.  So, it has to go through the correct channels
to get posted.

I really dont like the rules personally.  O'well.


Erin
mom to TYler t-18

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Follow-Ups:

[tri-wings] Re: was TRIS update, now censoring the right to information is wrong
From: Bess Raulerson

[tri-wings] TRACKING RARE INCIDENCE SYNDROMES UPDATE

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