[tri-wings] Re: Site is up
- From: "Corey & Dana" <coreydana@xxxxxxxxxxx>
- To: "Tri-Wings" <Tri-Wings@xxxxxxxxxxxxx>
- Date: Wed, 28 Apr 2004 09:15:09 -0500
Hello Larry and Katie!
The site looks GREAT thus far!!! With helping you in the beginning stages,
it is wonderful to watch the transformation! Here are a few sites that I
have came across through my research pertaining to "support", you may
already have some of these...I didn't list the obvious...Rainbows Down
Under, SOFT, Trisomy 18 Support Foundation or Noah's Never Ending Rainbow :)
If you need additional "informational" websites like NORD and Chromosome 18
Registry and Research Society, let me know! I am thinking you already have
those??? Here are some of the "support" organizations that I think will be
great resources although we didn't know of half of them when Noah was
diagnosed, I just learned of all of them through my research in developing
Noah's Never Ending Rainbow:
A Heartbreaking Choice, www.aheartbreakingchoice.com
Be Not Afraid, www.benotafraid.net
Chromosome Deletion Outreach, www.chromodisorder.org
Depression After Pregnancy, www.depressionafterdelivery.com
The Michael Gerard Puharic Memorial Fund. www.michaelsfeat.org
M.I.S.S. Foundation, www.missfoundation.org
SHARE Pregnancy & Infant LossSupport, Inc., www.nationalshareoffice.com
UNIQUE (Rare Chromosome Support Group), www.rarechromo.org
Keep up the GREAT work!
Angel blessings,
Dana Tehako-Esser (Auntie to Noah Thomas Campbell, Partial Trisomy of 2p+,
October 10, 2000 - May 14, 2001)
President & Chief Executive Officer
Noah's Never Ending Rainbow
7737 6th Avenue
Kenosha, Wisconsin 53143
Phone/ 262.605.3690
Business E-mail/ dana@xxxxxxxxxxxxxxxxxxxxxxxxxxx
Personal E-mail/ coreydana@xxxxxxxxxxx
COMING SOON...www.noahsneverendingrainbow.org
An easy way to raise money for Noah's Never Ending
Rainbow...BuyForCharity.com.
All you do is start your on-line shopping at www.BuyForCharity.com and buy
the gifts and things you need everyday at brand name retailers like Barnes &
Noble, eBay, Gap, OfficeMax, Eddie Bauer, Expedia.com, Macy's, Priceline,
Dell, Target, REI, Travelocity, Old Navy, AVON, Marshall Field's and more
than 350 others! At no extra cost to you, up to 35% of every purchase you
make automatically goes to Noah's Never Ending Rainbow, A National Trisomy
Organization!
------------------------------
From: "Larry & Kathryn Wheat" <klwheat@xxxxxxxxxxx>
Subject: [tri-wings] Site is up
Date: Wed, 28 Apr 2004 00:08:29 -0700
Hello Friends,
Okay A Butterfly's Touch's site is up but not done from any means, so
please go and check it out. I would love any feedback good or bad. the web
addy is www.abutterflystouch.org
Larry & Kathryn parents to Abigail Renee ^i^ 8/9/02 Full T-18 and foster
parents to a very happy and beautiful boy Jhia-vhonnii 19 months
------------------------------------------------------------------------
"May the Lord of peace himself give you His peace no matter what happens.
The Lord be with you all."
2 Thessalonians 3:16
klwheat@xxxxxxxxxxx
Meet Abigail @ www.trisomy18angel.com
Our Family @ www.angelfire.com/theforce/wheat
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End of tri-wings Digest V4 #106
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Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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