[tri-wings] Re: SHaron

>>>>>>>>>>>>>>>.All very much against our wishes for our daughter and it
will never be ok with us. We wanted her to be treated with the same dignity
and respect as any child but sadly they didn't let that happen and that's
what we have to try to learn to live with. > We sat and watched helplessly
as Sophie died over a three month period knowing there was the technology
available to possibly extend her life but no one with the insight to use it.
  The pain and frustration from knowing that is unbearably hard to live with
too.>>>>>>>>>>>>>>>>>>>>>>.....



I am so sorry for your loss, our medical treatment might not have been so
blatant as yours but basally the same our Rebecca did live until she was 14
1/2 years old and we relished every moment, that said our son Mark lost out
on a lot of things  'normal kids get " like trips to the park trips to
McDonalds ect as it was so hard with Bec as she got older 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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