[tri-wings] SHaron

Sharon
 
Your post made me so sad.  I wish you'd been living somewhere else so you had 
some professional compassion shown to Sophie during her short life.  I don't 
know how things might have panned out for Connor had he lived, it might have 
been the same for us, I can't tell.  A LONG time after I had Connor I was 
grateful in some ways that he hadn't been born alive just for me to watch him 
die while noone would help him.  That would have been too much for me to bear I 
think.
 
You and your family must have been incredibly brave.  And you've so many 
precious memories, despite the pain of your experiences.  I wish things could 
have been different for you.  
 
Thanks so much for posting Sophie's web address.  I loved looking at her 
pictures, she is so adorable and beautiful.  She's very like you looks-wise 
isn't she?  My thoughts are with you. xx
Demi > We were neither consulted nor were we able to be part of any decision 
making regarding Sophies treatment. We were faced with a solid brick wall of 
hard faced doctors who had made their minds up as soon as we got the t18 
diagnosis. The hospitals here already have a policy of no rescusitation at 
birth for confirmed t18 and 13 which again was not what we wanted. > Sophie was 
not treated as an individual, she was refused surgery/treatments purely because 
of her t18 diagnosis and she also wouldn't have been rescusitated at birth had 
she needed it. > All very much against our wishes for our daughter and it will 
never be ok with us. We wanted her to be treated with the same dignity and 
respect as any child but sadly they didn't let that happen and that's what we 
have to try to learn to live with. > We sat and watched helplessly as Sophie 
died over a three month period knowing there was the technology available to 
possibly extend her life but no one with the insight to use it. The pain and 
frustration from knowing that is unbearably hard to live with too.
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