[tri-wings] Re: Prenatal Diagnosis

I didnt know of Trisomy 18 until my baby Tyler.  I have always known about
down syndrome but I didnt know it was a trisomy.  I just knew it by name.
I think education is important.  I took pregnancy for granted until this all
happened to me.   Tyler is my only child and I always thought pregnancy was
not dangerous and I would have healthy children.  Well, my only child had
trisomy 18 and I developed preeclamsia at 32 wks.  So, both of my theories
were thrown out the window.
Thankfully, most people do have children that dont have any issues.  But I
also think that gives people false impressions and when issues arise they
dont understand.
I was so overwhelmed when I received Tyler's diagnosis.  I didnt know what
to do. Thank God I found www.trisomy18support.org   It saved me.  I learned
everything and I understood the diagnosis and that children do live,
contrary to what we are told.


"We were discussing ways to educate parents and get the information "out
there" - preferably before pregnancy. He gets the feeling that most parents
just dont want to know unless a problem occurs."
I think the doctor is right, most people dont want to know unless a problem
does occur.  They want to live in a world where those things dont happen to
them.  I think education is the best thing.  Tell others your story.  That
is what I do.  Every single person I have told about Tyler, never heard of
t-18. It was new to them and me.  I dont know how you go about educating
people expect by sharing your story.  I know my baby Tyler passed away, but
I would never change my mind about continuing with the pregnancy.  That was
the best decision we made.  Tyler is my child and I will always love him.

Erin
mother to Tyler Joel T-18 3/3/06

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: