[tri-wings] Re: PT6q?

>Any one out there with PT6q? I know Fawna's daughter is PT6p.

Katie, 

I don't think any of the lists have ever had a 6q, but I have had
contact with a few over the years.  Unfortunately I lost most of 
their contact info in a computer crash a couple of years ago, but
I do still have Meg's e-mail addy (her daughter is the oldest living 
6q I know of at a couple of years older then Miss P), plus I remember 
having put the mom of a set of 6q twin boys in touch with Meg, so 
what do you need?


Fawna, mom to Philina 23 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes 
(TRIS) project - We are currently enrolling all varieties of rare
trisomy, living & deceased, for the main project database.  To 
include your child's data and help update the medical literature 
please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page 
please see: http://www.livingwithtrisomy.org/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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