[tri-wings] Re: New to wings-try again

Hi Sandi,

Thank you for sharing Jonah.  You will find so much support here.  Everyone
understands your pain and its a wonderful place to cry, vent, and even
laugh.  I don't know where I would be today without the support and
understanding of this terrific group of people.  My son Zachary passed from
complications due to Trisomy 13 in November of 2000.  I did not know he had
T13 until after he was born.  He was with us four days.  Not a day goes by
that I don't think of him.  I recently gave birth to Matthew, who was born
April 24.  He is such a blessing.  While he will never replace Zachary, he
certainly has filled the void.  I look forward to hearing more from you and
would love to see pictures of Jonah.  My e-mail is alanleven@xxxxxxxxxx
Talk to you soon.

Joyce, mom to Zachary 11/15/00-11/20/00, Matthew, and wife to Alan

-----Original Message-----
From: tri-wings-bounce@xxxxxxxxxxxxx
[mailto:tri-wings-bounce@xxxxxxxxxxxxx]On Behalf Of Aaron & Sandi
Sent: Saturday, May 25, 2002 5:27 PM
To: wings
Subject: [tri-wings] New to wings-try again


I am re-posting this becasue some how part of it got cut off.

Thanks Sandi

Hi all,

This is my first post to wings. I just recently moved on from tri-family and
med. (actually I cannot get the unsubcribe to work for tri-family, if anyone
has any suggestions I would appreciate help.)

My Jonah Ethan was born on April 19, 2002 lived for a few short minutes and
went to heaven. I was induced at 28 weeks due to polyhydramnios. It was a
hard place to be becasue I wanted to keep him in as long as I could but my
body was fighting me. I was having contractions for 3 weeks and getting off
the couch to go to the bathroom felt like a big accomplishment. At the same
time I was caring for my 2 year old daughter Journey. I do not really
remember how I actually did that the last two weeks. Eventually I had to
have help. Our induction was scheduled for the 18th of April and Jonah was
born at 2:03 am on April 19, 2002. he was 1 1/2 lbs, 12 inches long. And he
was beautiful, I have never seen a more perfect set of lips and cutie nose.
He actually looked alot like my daughter. He came straight to me and he
really did not attempt to breath. his heart was enlarged and his chest
cavity was very under developed. He moved his arm and head but never opened
his eyes. How I wish he did, it is the one thing I really wanted. HIs heart
beat for over an hour after he was gone. His heart beat was normal all the
way till he actually had to take a breathe. He also had a large ompholece
and clubbed hands. He fought so hard to survive. I struggle sometimes with
wishing I could have kept him in my womb longer.As long as he was there he
was safe but I also know the abnormaliites of his chest would not have
allowed him to breath even at full term.

So my dh and I sang Jesus Loves you and told him how much we loved him in
those first few minutes, we said goodbye. We spent the next 6 hours with
him. And friends came to see him. We had Jonah's memorial on May 4th it was
beautiful. We did a power point presentation with Jonah's pictures and
people shared poems they had written etc. It was so encouraging to us. We
also did a memory book for people to sing and write a message to Jonah or
us. We gave out  what we called mamory stones to each person who came and a
scroll explaining the stones significance. PLanning the memorial was a kind
of therapy for us.

It wasn't until 3 weeks after Jonah was gone that the world sorta started
feeling so unstable. This last week has been a emotional week. The grief
takes on a deeper place and meaning after all the planning and go go go is
over. I am doing much better simply becasue I have lost the expectation to
get back to "normal" What ever that is. Day by day is how we are living our
life and I think I will keep it that way even as things get easier. Thanks
for listening. I am looking forward to being apart of wings. I would love to
hear peoples stories too. To hear about your children. Trisomy or not.
Children are such a gift whether they stay a long or short period of time.
I am so grateful to have a place to come like this. To have support. If
anyone is interested in seeing pictures of Jonah let me know. I would be
proud to send them.

Sandi wife to Aaron mom to Journey ~ 2 &
Jonah Ethan ~ bornand gone  April 19, 2002
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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