Pat,
I'm not a Grandma but my sister recently lost her little boy Jamin. Jamin had
Trisomy 13 and he actually lived a pretty normal life until he went into the
hospital with a lung infection and died from central apnea. I am having a
really rough time dealing with the loss as I am sure you are too. It's hard
watching our loved ones go through it as much as it is hard losing the precious
baby. You have come to the right place this list has tons of wonderful people
that
will help you any way they can. This list is especially great to me because I
don't want to cry to my sister because I don't want to upset her so I come
here.
Hugs to you I am so sorry for your loss.
Stacy Aunt to Trisomy 13 Angel Jamin 2/4/06-3/9/06
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line