[tri-wings] MY ANGEL STORY

God blessed my family with a beautiful baby boy***     Keilab Andrew Lyons was 
born 12 Jan 02 @ 802am weighing 6lbs 8oz  with a bilateral cleft palate and 
lip,  some intestines comming out of his cord and two spots on the back of his 
head where the skin did not close tightly***  i had him c/s because i had two 
boys previously by c/s,  zane & ian***  we had no idea this baby boy was gonna 
have anything wrong with him***   all i knew at the time after him being born 
was that he had the cleft palate and lip and i was told that could be fixed 
with plastic surgery***  in the recovery room i found out about his intestines 
& was also told that could be fixed and it was later that night***  as i lay 
there on the O.R. table i hear them say that he has to be taken to NICU because 
he needed oxygen***  of coarse iwas a concerned***  i was eventually taken to 
my room where i waited for what seemed like forever for the dr to come and talk 
to me***  on the way to my room from recovery,  they wheeled my bed into NICU 
next to Keilab's bed so i could glance at him***  the dr finally came in to 
tell me the heart breaking news that Keilab had what he thought was Trisomy 
13***  i had never heard of it before in my life***  tears were falling but the 
faucet really came on when he told me these children don't live past their 
first year***  we were given our different options***  my husband and i knew 
from that moment that it was in God's hands***  as is every thing but don't 
give it much thought until you face something like this***  we prayed that 
God's will would be done***  we prayed for strength to handle what ever was to 
come our way***  the test was done and came back positive***  i visited keilab 
down in NICU & would sing "Jesus Loves Keilab" every time i went***  i was 
discharged on the 16th and it was hard leaving without a baby***   i found out 
before leaving keilab would be able to come home that weekend***  something i 
never thought would happen***  we had to learn how to put his feeding tube in 
before bringing him home on the 19th of January***  a scary but happy day 
also***   i was scared to bring him home and have him die here***  i did not 
want the memories here to live with me***  on the 21st of jan at about 1100 he 
had a spell of apnea & my mom was able to stimulate him by rubbing his chest*** 
 well the next spell of apnea i was the one that found him***  i did not see 
the first one***  it scared me to see my baby lying there on the couch blue as 
i tryed rubbing his chest and nothing happening***   we called 911 and they 
came but needed to do nothing because Keilab was a little fighter***  after 
about 4- 5 minutes he came back on his own***  his heart would drop down to 
20-30 and then it would come back up to 160***  these spells went on until 
802pm, 21 Jan 02***  (notice time of birth and time of death)***  every time he 
would have a spell of apnea i would bend down and sing "Jesus Loves Keilab" and 
rub my finger across his forehead***  one time before he died we were watching 
him and all of a sudden both of his arms raised straight up to the ceiling***  
he was letting Jesus know he was ready to go***  keilab's eyes were swollen and 
was not able to open them very much or often***  that night before he died he 
opened them to look at his dad and i***  i tried closing them because i did not 
want him to pass with his eyes open but he opened them right back up***  he was 
my little tiger***  i knew that it was another boy but my husband did not until 
he was born***  we wanted a girl with this pregnancy***  i would not trade 
Keilab for the most beautiful girl in the world***  and if God would give him 
back to me,  i would not ask him to make Keilab "perfect" because to me he was 
perfect***  we gave Keilab back to God 25 Jan 02***  his dad and i carried his 
little casket***  he is running on streets of gold with a whole body and he 
will be there waiting for me when i go home

last night i had a crazy dream,  a wish was granted just for me, it could be 
for anything,  i didn't ask for money or a mansion in malibu, i simply wished 
for one more day with you***  one more day, one more time, one more sunset 
maybe i'd be satisfied, but then again i know what it would do, leave me 
wishing still for one more day with you, one more day***   first thing i'd do 
is pray for time to crawl, i'd unplug the telephone, keep the tv off, i'd hold 
you every second, say a million i love you's, that's what i'd do with one more 
day with you***   one more day, one more time, one more sunset maybe i'd be 
satisfied, but then again i know what it would do, leave me wishing still for 
one more day with you, one more day

song played at Keilab's viewing
by His loving grace,
sam
mom to Zane-4, Ian -2 & Keilab ^i^
  

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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