[tri-wings] Re: List Mum MIA/TRIS Connection(?)

cc'd to Wings & Med lists

>I have her on my buddy list and I haven't even seen her on line for some 
>time. Fawna????Have you heard from her?

Nan,

Well, not for a couple of weeks, but here's the story....  

About 2 weeks ago now, I got on the phone and called Karen with an
ASAP request from TRIS.   She asked me to give her a couple of weeks
to get the info for us.  Hopefully that's at least part of why she's MIA.

And now let me throw the same request out to the whole list.  

In light of the high profile of everything negative that's been going on 
internationally with Trisomy 18 babies lately, TRIS has decided to go
international  in the pilot phase.  (English speaking countries only for 
the pilot though.)   We've also decided to add Trisomy 13 flavors into 
the pilot.  But in or order to go international, we desperately need 
international advisors.  We could use rare trisomy friendly doctors, 
therapists, & special educators from Canada, the UK, Australia, New
Zealand & South Africa.  Also we still have a need for more contacts 
even in the USA.  So any list members who have a "special" contact
that they think might be interested in getting in on this much needed
project, we'd really appreciate the referral.

Fawna
Research Coordinator 
Tracking Rare Incidence Syndromes Project
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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