[tri-wings] Libby

I just wanted to let you all know that Libby DeMers gained her wings on Monday. 
As you'll read in this note from her mom, this amazing little girl lived for 
six days despite being premature and having T18. Please keep them in your 
thoughts and prayers.   Maya, Mieko and Hana's mom

Maya,
I just wanted to extend a big thank you for your very kind and supportive words 
on our caringbridge site.  It has been such a heartbreaking 6 days.  Our first 
child, Max, was just born 10 1/2 months ago and it was a very healthy, normal 
pregnancy.  Max is a perfectly healthy child.  When we found out we were 
pregnant with Libby, we had no reason to think this pregnancy would be any 
different.  In fact, this whole time it had felt perfectly normal and we had 
perfectly normal ultrasounds.  The only thing that cued us that something might 
be off this time is that at my regular checkup a few weeks ago, my tummy seemed 
to measure larger than it was supposed to.  The doctor ordered an ultrasound 
scheduled the day of my next appointment because she thought the baby might be 
large.  In fact, my husband and I were wondering, "maybe there is an extra baby 
in there!  Maybe there are twins and we just didn't see the other in the 20 
week ultrasound!"  

We had the ultrasound and an hour later I was told I had to deliver my baby 
that day.........and that instead of a very large baby (or two), our baby was 
tiny and I was just full of excess amniotic fluid.

It has been a week of disbelief and I still have moments when I forget I'm not 
pregnant anymore.

My co-worker Melissa had told me that she followed your story for years and 
that she had emailed you.  I googled you and read up on your story.  How 
wonderful that you were able to spend 4 years with your beautiful daughter!  
For a condition that generally doesn't even allow the baby to make it to term, 
it is such a miracle that our children were even allowed any time with us.  I 
am so grateful for the 6 wonderful days I had with my baby girl.  The doctor 
told me that if we had waited even another hour to deliver the baby that my 
placenta would have ruptured and Libby would not have made it at all.  Someone 
was definitely looking out for us that day that we were able to deliver her and 
get to spend this time with her.

Thank you again for posting on my site, it really means a lot to me to hear 
from other parents who have been through this as well.

Teresa DeMers

 




      
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