[tri-wings] Re: Leslie's Angel Day

>Well, we had the balloon release for Leslie today. 
>My parents and Grandparents, sister and family, 
>Thom and one of my cousins were there..l. I think 
>my parents and family finally understand...

Stacey,

I'm so glad that it went well, and you've had this break
through with your family.  You can send me a picture a
fawna33@xxxxxxxxxxxxxx  

Are you going to post them on her website too?  Also would
you mind if I included Leslie's site in the Livingwithtrisomy.org
family webpage launch site, because what you are doing IS
most definately livingwithtrisomy too.



Fawna, mom to Philina 22 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes 
(TRIS) project - We are currently enrolling all varieties of 
Trisomy 13 & 18, living & deceased, for the pilot phase.  
To include your child's data and help update the medical 
literature please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page 
please see: http://www.livingwithtrisomy.org/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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