[tri-wings] Re: Karly Rose Hutchison

Thank you guys for sharing your pain. I'm pretty numb, but know enough to
realize that I've been blessed very much. Paula would have been 39 last
Monday. She died a month ago today. She lost two daughters, one to T-18 who
only lived 6 hours. She worked with me and made me eat lunch. I didn't hug
her nearly enough. 

I remember so clearly when she called us from the doctor's parking lot to
tell us that the doctor said that her baby's little hand was deformed. We
were in Hawaii, she was in Wichita KS. We couldn't hold her and comfort her.
I told her that it was ok if the baby's hand wasn't even there. It could be
fixed. But we found out a couple of weeks later that it couldn't. Paula had
a very traumatic delivery and the placenta tore at her home. It took my wife
about 5 minutes to drive across town and take her to the hospital. Annalis
was born. They tried to help her but couldn't. She died in Paula's arms.
Paula died alone in a hospital room and I didn't get to even hold her. I
didn't even know that she was seriously ill. 

Sorry, I'm just rambling. Thanks for being there. 

Paul Farmer

-----Original Message-----
From: tri-wings-bounce@xxxxxxxxxxxxx [mailto:tri-wings-bounce@xxxxxxxxxxxxx]
On Behalf Of G&S
Sent: Friday, June 27, 2008 10:50 PM
To: tri-wings@xxxxxxxxxxxxx
Subject: [tri-wings] Re: Karly Rose Hutchison


>>>>>>>>>>
I miss her so much but I am disturbed some moments by how normal things
already feel without her.? I do not want to feel this way!!!!!? She changed
my life, she made me and my family better, I wanted to keep taking care of
her even though I knew we were destined for challenges throughout her
lifetime.? I want her back.? But, alas, it is not meant to be .? My heart is
broken. ?I know it will heal but it will never be whole again.? Thanks for
"listening"...<<<<<<<<<



Kristy, I  cry for you, I cry for me and all the other families who have to
face this loss.  My Rebecca lived to be 14 1/2 years old but I can relate to
what you say about getting used to the "normal life" and I feel guilty for
enjoining it. How ever how brief our triers lives, we will never be
completely normal as they have touched us and those around us and we are all
forever changed. And there will forever be a hole in our lives, a person
missing........


Susan mom to Rebecca t18m 6/6/91-2/5/06 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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