[tri-wings] Re: Karly Rose Hutchison

Kristy,
Thanks so much for sharing Karly's story here.  You have my sympathy  
as you mourn the passing of your beautiful daughter.  As you can see,  
it is the middle of the night, and I'm up typing away.
It is always amazing to me that the doctors still are so shocked when  
they meet one of our little ones!  My nephew is an MD and I've tried  
my best to "knock some sense into his head" that just because a child  
has T-18 doesn't mean you should give up treatments.  I'm glad that  
you had doctors who would listen to you and do the heart surgery.   
I'm glad that Karly had over 4 months to breathe so much easier.  I'm  
also glad that you feel the need to share her story with others.   
Thank you so much.  I don't know if it is a blessing or not to know  
in utero that your child has a trisomy.  You can probably answer that  
much better than I can.  My daughter found out about half way through  
her pregnancy.  Then, she spent the rest of her pregnancy worrying  
and scared.  I'm glad that you got to spend that time enjoying being  
pregnant.  I was worried about my granddaughter, but I was also  
worried about my daughter and son-in-law.  I felt like I had been hit  
with a double whammy.  Hope would have been 6 last November.  There  
isn't a day that goes by that I don't think of her.  She changed our  
lives forever.

 From your note on Tri-Meds, I see that Karly was born on my  
granddaughter's 3rd birthday.  What a great day to be born!

                On Jun 16, 2008, at 9:32 PM, ushutch@xxxxxxx wrote:
                After months of lurking on the Tri-Med list trying to learn
                as much as I could, here I am. I think on some level I
                believed that if I just knew enough and gave enough, I'd
                get to keep her. Karly passed away on 31 May.

Welcome to the Trisomy Family.

Hugs,
Sheila Helleson                 Minnesota Grandma to:
Hope (T-18 ^i^ 11-1-1) & Alison; Cadence and Bridge
Mom to Cheryl (& Denny);  Wade (& Charity)
Wife to Richard for 36 years

"Shared joy is double joy, and shared sorrow is half-sorrow."   
Swedish Proverb
Laughter and tears are the healing medicines of God.








                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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