[tri-wings] Re: Jennifer Merando


----- Original Message -----
From: "Jennifer Merando" <jennifermerando254@xxxxxxxxxxx>
To: <tri-wings@xxxxxxxxxxxxx>
Sent: Wednesday, March 19, 2003 4:28 PM
Subject: [tri-wings] Re: Jennifer Merando


>
Hi Jennifer,
Welcome to the group, but I am also so sorry for your loss of little
Zachary.  Our daughter Erin would have been eight years last november.  She
lived for six months.  I know we were among the lucky ones to have her for
that long, but it's never long enough.
Have you had a chance to find out about the support group SOFT(Support
Organization for Trisomy 18, 13, and related disorders)?  Their annual
conference is in Salt Lake City this year in mid-July.  There are workshops,
sibling outings, a memorial balloon release, along with lots of hugs and
tears.  Some of the families that attend still have their children, and
others, like us, have lost our little angels.  I wish everyone could attend
at least one conference.    But this is a great support group too, with
everyone on here always ready to listen and lend support.
 If you'd like, check out Erin's website.  The address is at the bottom of
this.
Hugs to you and your family,
Gloria Jorgenson--mommy to angel Erin(11/4/94-5/4/95), plus Loren, 27; Adam,
26; Brenda, 22; Ashlyn, 11 on April 1.
http://remembering_erin.tripod.com/

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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