[tri-wings] Re: Iron man for trisomy kids

Hi Barbara
  Thanks for having us posted!
   
  The other day I wrote to all of you regarding Amanda's condition and asking 
for some info.  My husband and I are pretty much decide on operating her.
   
  Thank to all of those who wrote to us about their expirience and their 
opinion.  We want to give her the best opportunity to live with the best 
quality of life possible.
   
  We just now will need you to keep praying for us as the day of the meeting 
with the doctor is 1st of April and there we will discuss with them about our 
decision.
   
  Thank again and God bless you all!
   
  Esmirna and Eric Cugurs 
  
Barbara Farlow <b_farlow@xxxxxxxxxxx> escribió:
  

Hello All,

Here is the latest newsletter from Michael the Ironman. He is planning to run 
18 ironman in a year to raise awareness for trisomy 13 and 18. 

His site is at www.ironmanforkids.com

This is the newsletter 
www.ironmanforkids.com/wp-content/uploads/2008/03/march-newsletter-ifk.pdf

He tells me that there are many physicians who do ironmen so he hopes to have 
an influence on them.

He would really appreciate hearing from you about your special child. 

Barb
mom to Annie

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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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