[tri-wings] Re: Introduction - Brenda G.

Brenda,

My heart broke for you when I read your post this morning.  We have so
very much in common.  I, too, lost a much wanted baby to Trisomy 13.
And, I suffered from post partum blues mixed with the terrible grief of
losing my child.  If you would ever like to talk, please email me off
the list at Brenda.Thomas@xxxxxxxx and I will give you my phone number.
Katie Wheat, from this list, offered me her phone number shortly after I
joined this group and I tell you, it was the most comforting phone call
I could ever have made.  No one can understand what you are going
through like the wonderful people on this list.  We have all walked in
your painful shoes, some with more similarities to your story than you
would ever believe. You will find great comfort here.  The pain from the
loss of your little John will never go away, but it will get a little
less painful every day.  =20


Hugs,
Brenda, wife to Rich, mommy to Matthew Alexander (2 1/2), Grace
Alexandra (^i^ 8/31/03 full T-13) and Nicholas Andrew (almost 3 months!)

-----Original Message-----
From: tri-wings-bounce@xxxxxxxxxxxxx
[mailto:tri-wings-bounce@xxxxxxxxxxxxx] On Behalf Of Brenda Grabow
Sent: Saturday, October 30, 2004 10:38 AM
To: tri-wings@xxxxxxxxxxxxx
Subject: [tri-wings] Introduction

I'm Brenda from Long Island, New York.  On October 4, 2004 my husband
Doug and I found out that our much much wanted 2nd child a little boy
(John Nicholas) had T-13.  After doing our own research, as we were
given very little information by our doctor, we decided to interrupt the
pregnancy.  This was the hardest decision we ever had to make.  A big
factor was our 3 1/2 yr old daughter Lauren.
I am in so much pain I don't know how to make it stop.  It seems like
post-partum has kicked in and I don't have a baby to show for it!!!

I'm going for my 4 week check-up on Nov 4th and at that time I am
telling my doctor that I am finding another practice.  We were never
referred to genetic counseling, a social worker, nothing!!!!!  We were
left on our own.  We were so blindsighted that we weren't functioning
completely.  I have no idea if John had full T-13 or not.  The doctor
said they had seen many anomalies on the sonogram before they did the
amnio, but never said anything!!!  He should have told us that there
"might" be a problem, so we would have been prepared. We walked into his
office expecting everything to be fine and WHAM!!!  Here comes the
bus!!!  When I asked him if this could happen again, he said
"absolutely, you are almost 40."   I'll be 38 in 2 weeks!!!!  Does that
mean this is inherited?  He said "maybe, not really sure."  I'm just fed
up.  We have no answers.  I found a new practice of doctors who has a
geneticist on staff and am going to talk to him/her as soon as I'm able.

Thanks for letting me vent.

Brenda
Mommy to Lauren (3 1/2) and John Nicholas T-13 ^i^ 10/6/04


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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