[tri-wings] Re: Introduction - Brenda

----- Original Message -----
From: "Brenda Grabow" <pankyg@xxxxxxxxxxxxx>


> I'm Brenda from Long Island, New York.  On October 4, 2004 my husband Doug
and I found out that our much much wanted 2nd child a little boy (John
Nicholas) had T-13. <


Hi Brenda,

I'm so sorry for what you have been through these last few weeks.  You have
definitely had a rough time and a lousy Doctor just makes it worse.  I'm
here because of my 2nd daughter,
Jessica who was born on May 4, 2002.  She visited us for an hour and 36
minutes before going on to her final destination.  If you'd like to read
about our journey you may do so, as well as any other newbies, at my
website: http://home.att.net/~warpehoski   This list is a wonderful survival
tool.  We all unfortunately have had the same outcome for our little
triers - so we all can relate to many of the things that you are and will be
facing down the road.

I too was 38 when I found out that Jessica had T18.  I found out through a
bad AFP test that led to a level 2 sonogram which led to the amnio.  I
remember the day the results came back was the worst day of our lives - I
still believe that - even worse than her death.  As far as the Trisomy
having been hereditary - if it was Full the answer is no, your Doctor should
be able to provide that to you.  Please correct me if I'm wrong Karen, but
some partial trisomys are hereditary and I believe that is if it is a
translocation on one of the parents.  It's been a while since I've looked at
all that, so I hate to quote anything.  Karen has some emails that explain
the genetics very clearly that maybe she will post.  As far as your chances
increasing with subsequent pregnancies - I agree with Mandy - statistics
don't mean squat after you have had a trisomy baby.  If you can be the one
of however many thousand pregnancies to get T13 or T18, than 1 in 100 isn't
any better because you just happened to be that one!  This is going in the
wrong direction.  What I'm trying to say is that, provided you are not a
carrier (which can be determined by a blood test of you and your husband)
and you want to try again-go for it..  We did and I delivered a beautiful
healthy little girl a year ago - yes I was 40!!!  As Mandy said, it does not
replace the loss that you are feeling right now, nothing will- but it does
bring a whole lot of happiness when you're ready.

Feel free to post when ever you are up to it.  Sometimes we don't always
stay on topic, and sometimes we get a little goofy-but sometimes you need a
little off the wall laughter too.  If we offend you please speak up and we
will tone it
down.

I hope somehow you are able to find some peace out here.

lotsofluv
Deanna ~~~~
Mom to Nicole 16, Jake 12, Jessica (our beautiful T18 angel) 5/04/02 and
Rylee 1 year old, 10/20/03!!!
Wife to Mike
Meet Jessica @ http://home.att.net/~warpehoski


I live in my own little world.  But it's ok - They know me here.


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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