[tri-wings] Introduction

I'm Brenda from Long Island, New York.  On October 4, 2004 my husband Doug and 
I found out that our much much wanted 2nd child a little boy (John Nicholas) 
had T-13.  After doing our own research, as we were given very little 
information by our doctor, we decided to interrupt the pregnancy.  This was the 
hardest decision we ever had to make.  A big factor was our 3 1/2 yr old 
daughter Lauren.
I am in so much pain I don't know how to make it stop.  It seems like 
post-partum has kicked in and I don't have a baby to show for it!!!

I'm going for my 4 week check-up on Nov 4th and at that time I am telling my 
doctor that I am finding another practice.  We were never referred to genetic 
counseling, a social worker, nothing!!!!!  We were left on our own.  We were so 
blindsighted that we weren't functioning completely.  I have no idea if John 
had full T-13 or not.  The doctor said they had seen many anomalies on the 
sonogram before they did the amnio, but never said anything!!!  He should have 
told us that there "might" be a problem, so we would have been prepared. We 
walked into his office expecting everything to be fine and WHAM!!!  Here comes 
the bus!!!  When I asked him if this could happen again, he said "absolutely, 
you are almost 40."   I'll be 38 in 2 weeks!!!!  Does that mean this is 
inherited?  He said "maybe, not really sure."  I'm just fed up.  We have no 
answers.  I found a new practice of doctors who has a geneticist on staff and 
am going to talk to him/her as soon as I'm able.

Thanks for letting me vent.

Brenda
Mommy to Lauren (3 1/2) and John Nicholas T-13 ^i^ 10/6/04


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: