[tri-wings] Human Genetic Information Inquiry
- From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>
- To: "Tri-Wings" <tri-wings@xxxxxxxxxxxxx>,"Tri-Family" <Tri-Family@xxxxxxxxxxxxx>,"Tri-Mosaic" <tri-mosaic@xxxxxxxxxxxxx>
- Date: Mon, 25 Feb 2002 10:43:28 +1100
I just wanted to post an announcement about public meetings regarding the
joint inquiry in protecting human genetic information.
There are public meetings scheduled in Sydney and Wollongong as follows
Wollongong
Monday 4th March
6-8pm (afternoon tea will be served from 5.30pm)
at the Wollongong Unicentre, Building 11
Level 2, Function Centre Room 2
Conference and Function Centre
University of Wollongong
(has wheelchair access)
SYDNEY
Tuesday 12th March
6-8pm
(tea and coffee from 5.30pm)
at Parliament Theaterette
Parliament House
Macquarie Street
Sydney
(has wheelchair access)
This is what the ALRC and NHMRC have to say about the inquiry
Advances in genetic science and technology are occurring at a rapid rate -
offering obvious benefits for better medical diagnosis and treatment. At the
same time, there are community concerns about the possible dangers arising
from unfair or improper use of genetic information.
Genetic information and samples may be used in medical research and
practice; tissue banks and genetic databases; health administration;
employment; insurance and supperanuation; access to service and
entitlements; law enforcement and evidence in court.
The Australian Law Reform Commission and the Australian Health Ethics
Committee are conducting a joint inquiry to see what sort of regulation is
needed, in relation to human genetic samples and information, to:
Protect privacy
provide protection from unfair discrimination
ensure high ethical standards of conduct
We would like to hear from you about how best to develop safeguards for the
use of human genetic information
You need not be an expert - the inquiry wants to hear from anyone who has an
interest, experience or concern in this area
For further information
ALRC 02 9284 6333
Fax 02 9284 6363
TTY 02 9284 6379
E-mail genetic@xxxxxxxxxxx
website www.alrc.gov.au
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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