[tri-wings] Re: Hi I just joined~long!

Stacy,
 
I just read Jamin's story, I have to say, you tell it beautifully and it  
speaks loudly of the love you have for him. 
 
I know the pain you and your sister went through, we too tried to get help  
for our daughter Emma, but were denied, chastised and even berated for wanting  
to cause her pain and extend her suffering. 
 
A few things I wanted to let you know. You and your sister, did every thing  
you could to help Jamin, remember that and believe it. As you said, it was out 
 of your hands and in God's hands and you must always hold that close. 
 
Right now your heart is hurting so bad that no matter what facts your head  
tell it about Jamin and his medical problems, it does not matter. It hurts to  
much to understand. Someday, your heart and your head will both be at the same 
 place and you will find a sense of peace that was not there before. You will 
 always miss him and you will always love him, but you will find peace. 
 
No matter what, do not listen to anyone who might tell you that what you  
tried to do was wrong. That fighting for Jamin's life was not worth it. He was  
very worth it and you fought a brave fight, you will draw on the strength it  
took you to fight for him for the rest of your life and your children and your  
sister's children will all benefit from the two strong women who tried so 
hard  to save Jamin. 
 
You followed your hearts and that is always, always, the right answer. 
 
Here is a poem that comforts me:
 
 
Now that I am gone,
remember me with smiles and laughter.
And if you need to cry,
cry with your brother or sister
who walks in grief beside you.
And when you need me,
put your arms around anyone
and give to them what you need to give to me.
There are so many who need so much.
I want to leave you something---
something much better than words or sounds.
Look for me in the people I've known
or helped in some special way.
Let me live in your heart as
well as in your mind.
You can love me most by letting
your love reach out to our loved ones,
by embracing them and living in their love.
Love does not die, people do.
So, when all that is left of me is love,
give me away as best you can.
 
__author unknown
 
I hope it comforts you too,
Bess
mom to Ben, Jake, Zack, Chloe and Emma Grace 12-2-3 to 12-15-03 Full  T18



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