Welcome Stacy, I'm just sort of an "unofficial" lurker around here. Fawna, mom to Philina 23 yrs (PT6p & Moya Moya Syndrome) Research Coordinator: Tracking Rare Incidence Syndromes (TRIS) project - We are currently enrolling all varieties of Trisomy 13 & 18, living & deceased, for the pilot phase. To include your child's data and help update the medical literature please see: http://web.coehs.siu.edu/Grants/TRIS/ And to add a link for your Trisomy child's personal web page please see: http://www.livingwithtrisomy.org/ Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line