Robyn, What a miracle that God blessed you with precious Tiffany so soon after Brittany gained her wings and what an appropriate name on such a special day. I know you are so proud. Chad and I are wanting to have another baby too, but we just have to leave it in God's hands. Brittany sounds like such a sweet baby girl, just like our Ashley. I'm so glad you were able to share her story with me. It must have been very difficult for you not to know about her Trisomy condition until she was born. We had 21 weeks to ponder the "what if's" before Ashley was born. Just like Brittany, Ashley also had a cleft lip as well as a cleft palate. It was amazing though that people would notice her deformity when they first looked at her, but in a few minutes it disappeared and all you could see was her sweet angelic face. Ashley also had a really bad night on her second day and we were called into the nursery in the middle of the night to say good bye. We held her and kissed her and told her we loved her and thought she was leaving us, but she fought back and her O2 levels rose along with her heart rate. I guess she felt that she had more lives to touch, so we were blessed with 66 more wonderful days. I'm glad that you find FL a great place to live. Although my husband and I live in AL, I will always call Palm Beach County home. I know it had to be hard for you to leave Brittany buried in NJ, but you are right..she is always with you. I'm sure she is up in heaven welcoming little Ashley Grace and showing her the ropes. That is such a comforting thought for me. I will definitely let you know the next time we are headed to FL. We usually go down several times a year since my whole family is there, but it may be tough this year since I depleted most of my vacation time being home with Ashley. If we do go it will probably be at the end of July for my niece's b-day. Have a great day and talk to you soon! Luv, Tiffany-Mommy to Ashley Grace (T-9, 1/20/04-3/28/04) and wife to Chad "For everything God created is good, and nothing is to be rejected if it is received with thanksgiving..." 1Tim 4:4 NIV -----Original Message----- From: tri-wings-bounce@xxxxxxxxxxxxx [mailto:tri-wings-bounce@xxxxxxxxxxxxx]On Behalf Of Robyn Seaboldt Sent: Monday, April 26, 2004 4:24 PM To: tri-wings@xxxxxxxxxxxxx Subject: [tri-wings] Re: Hello Tiffany, What a small world this is! I actually grew up in New Jersey and graduated also in 1990 from Brick Memorial HS. We moved to Florida in 1998 because of Lloyd's Mom always wanting to come here and we weren't doing so great in NJ so we figured we'd give Florida a shot. It's actually been a great decision and we've done well here. Brittany was born in NJ (along with Tiffany) I didn't know anything was wronguntil she was born although I had sonograms. My water broke in my 8th month but being that this was my first baby and I was only 25, I thought everything was okay because plenty of healthy babies come a month early. When she was born the doctor noticed the cleft lip and that's the first time I heard of any Trisomy. I never even knew Down's was also Trisomy 21. At first I thought she would live and I would just have a special needs baby even though the doctors told me the life expectancy was very little. She wasborn on January 9th (my grandpa's b-day) and on the morning of the 11th I was woken up at around 5am and they told me she had a bad night and I should come right away. I was still in the hospital and she was in th NICU. I reallythink I flew to the NICU and I can remember the nurses yelling at me tostop which of course I ingorned then completly. They were try ing to keep her alive but really fighting a loosing battle because God had already decided to bring her to Him. I called Lloyd and he was there in seconds. I held her as she gained her wings which was wonderful and terrible all at the same time. I just told her over and over that we loved her and that she should go now and that it was okay. Lloyd held her after she had gone but really couldn't take it and had to leave. My mom came later as well. Her funeral was entirely paid for by the fire department Lloyd belonged to at thetime which was so wonderful of them. Sometimes I feel guilty for leaving her in NJ and moving to Florida but I know she is always there with me where ever I am. Tiffany was born the same year (1996) on Christmas day and what a miracle sheis!!! I always say that the one good thing that came from Brittany dying is that Tiffany was born because if Brittany would have lived then we wouldn't of had Tiffany and I just adore my Tiffany! Did you know that Tiffany means "appearance of God?" I think that is so approaite since she wasborn of Christmas Day. Let me know if you're ever in the area visiting your sister and maybe we can meet!! I live right off of Okeechobee Blvd near the I-95 exit/enterance and work downtown on Clematis. Hugs, Robyn Mom to Brittany Marie 1-9/1-11-96 T-13 and Tiffany Noelle 12-25-96 age 7 Wife to Lloyd West Palm Beach Florida ---------------------------------------------------------------------------- FREE pop-up blocking with the new MSN Toolbar - get it now![1] --- Links --- 1 http://g.msn.com/8HMBENUS/2734??PS= Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line