[tri-wings] Re: Hello

Tiffany,
    Hello and welcome to the list. I sorry you had to find us, but I'm glad
you have to share Ashley Grace with us. I know you pain you have we all have
been there and some are still there. I'm on the list because we lost our
daughter Abigail Renee on 8/9/02 due to T-18. Abigail was stillborn at 29
weeks and even with the short time she was with us she changed our lives
forever and the people around her. I will keep you in my prayers while you
go through this time of sadness and pain. The road ahead of you looks so
long but I promise you will find peace and the pain will start to hurt less
some day soon. I read your post and I wanted to recommend a book to you that
helped me so much after losing Abigail. I think it will help you even more
with having Ashley for 68 days. It is called From Mourning to Morning by
Harry Salem. You will have to go to the net or a Christian book store for
it. I hope to hear more about Ashley as time goes on and you are ready to
share. Please know my prayers are with you and God Bless. Again Welcome to
the list.
Love,
Katie
Larry & Kathryn parents to Abigail Renee ^i^ 8/9/02 Full T-18 and foster
parents to a very happy and beautiful boy Jhia-vhonnii 19 months
------------------------------------------------------------------------
"May the Lord of peace himself give you His peace no matter  what happens.
The Lord be with you all."
 2 Thessalonians 3:16

klwheat@xxxxxxxxxxx
Meet Abigail @ www.trisomy18angel.com
Our Family @ www.angelfire.com/theforce/wheat
----- Original Message ----- 
From: "Tiffany Killcreas" <tiffanyk@xxxxxxxxxxxxx>
To: <Tri-Wings@xxxxxxxxxxxxx>
Sent: Thursday, April 22, 2004 8:14 AM
Subject: [tri-wings] Hello


> Hello Everyone!
>
> I am new to the List Serv and wanted to introduce myself to everyone.
I've
> enjoyed watching the support you have given each other through postings
and
> would love to strike up new friendships with people who have been through
> the Trisomy roller coaster.
>
> My name is Tiffany Killcreas and my husband Chad and I live in Opelika,
> Alabama.   We learned we were expecting our first child last May while on
> job assignment in Sydney, Australia.  We had been trying for over a year,
so
> we were extremely excited!  When we went in for the ultrasound to find out
> the sex at 19 weeks, they discovered several anomalies suggesting a
> chromosome disorder.   After some testing we found out we were having a
> little girl (Ashley Grace) and that she had something called Isodicentric
9
> or Tetrasomy 9.  This is a Trisomy 9 with an extra copy of genetic
> material...there have only been 30 cases ever reported.  Our hearts were
> broken, but we pressed on.  Of course, we were told that she probably
would
> not make it through the pregnancy or delivery and if she did we may only
> have her for an hour or so.  Well, she showed all of the Dr's.  She stayed
> with us at home for 68 glorious days and we were able to make memories
that
> we will treasure for a lifetime.
>
> Ashley has only been gone for 3 and a half weeks and it seems like a
> lifetime.  I miss her so much!  I know the pain will not be as sharp over
> some time, but right now it seems to get worse every day.  I know you can
> all relate to how I am feeling.  It is good to know there is somewhere I
can
> go to speak to people who understand.
>
> Love,
>
> Tiffany - Mom to Ashley Grace (T-9 1/20/04-3/28/04) and wife to Chad
>
> "For everything God created is good, and nothing is to be rejected if it
is
> received with thanksgiving..."   1Tim 4:4 NIV
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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