[tri-wings] Re: Hello

Dear Tiffany,
 Welcome to this list and I am so happy you were given earthly time to make
wonderful memeories. The thing we found most was that to have NO REGRETS was the
only thing that helped. Tho we weren't given earthly time outside mommys tummy
we made the very most of each and every heartbeat and moment with my first
Grandson Kaden James. Hi big sis played with sang to and talked to him as if she
could see him already. Bless her little heart at 2+ yrs she totally understood
and embraced her baby brother. We will all be a lifetime of missing and healing
and we continue to remember and celebrate his most beautiful liftime. We needed
him but God needed him more. We will live our lives as a tribute and be so
thankful for all the blessing he's brought to us. We have been given God's peace
thru this storm and he has given us our newest addition Renna Grace who will be
one July 4th. We are not asked to understand just to be faithful and love.
We have been on this long journey and find so much healing in being here for
others. We all carry them in our hearts and know a love that never says goodbye.

Love, LouAnn

Tiffany Killcreas wrote:

> Hello Everyone!
>
> I am new to the List Serv and wanted to introduce myself to everyone.  I've
> enjoyed watching the support you have given each other through postings and
> would love to strike up new friendships with people who have been through
> the Trisomy roller coaster.
>
> My name is Tiffany Killcreas and my husband Chad and I live in Opelika,
> Alabama.   We learned we were expecting our first child last May while on
> job assignment in Sydney, Australia.  We had been trying for over a year, so
> we were extremely excited!  When we went in for the ultrasound to find out
> the sex at 19 weeks, they discovered several anomalies suggesting a
> chromosome disorder.   After some testing we found out we were having a
> little girl (Ashley Grace) and that she had something called Isodicentric 9
> or Tetrasomy 9.  This is a Trisomy 9 with an extra copy of genetic
> material...there have only been 30 cases ever reported.  Our hearts were
> broken, but we pressed on.  Of course, we were told that she probably would
> not make it through the pregnancy or delivery and if she did we may only
> have her for an hour or so.  Well, she showed all of the Dr's.  She stayed
> with us at home for 68 glorious days and we were able to make memories that
> we will treasure for a lifetime.
>
> Ashley has only been gone for 3 and a half weeks and it seems like a
> lifetime.  I miss her so much!  I know the pain will not be as sharp over
> some time, but right now it seems to get worse every day.  I know you can
> all relate to how I am feeling.  It is good to know there is somewhere I can
> go to speak to people who understand.
>
> Love,
>
> Tiffany - Mom to Ashley Grace (T-9 1/20/04-3/28/04) and wife to Chad
>
> "For everything God created is good, and nothing is to be rejected if it is
> received with thanksgiving..."   1Tim 4:4 NIV
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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