[tri-wings] Hello

Hello Everyone!
 
I am new to the List Serv and wanted to introduce myself to everyone.  I've
enjoyed watching the support you have given each other through postings and
would love to strike up new friendships with people who have been through
the Trisomy roller coaster.
 
My name is Tiffany Killcreas and my husband Chad and I live in Opelika,
Alabama.   We learned we were expecting our first child last May while on
job assignment in Sydney, Australia.  We had been trying for over a year, so
we were extremely excited!  When we went in for the ultrasound to find out
the sex at 19 weeks, they discovered several anomalies suggesting a
chromosome disorder.   After some testing we found out we were having a
little girl (Ashley Grace) and that she had something called Isodicentric 9
or Tetrasomy 9.  This is a Trisomy 9 with an extra copy of genetic
material...there have only been 30 cases ever reported.  Our hearts were
broken, but we pressed on.  Of course, we were told that she probably would
not make it through the pregnancy or delivery and if she did we may only
have her for an hour or so.  Well, she showed all of the Dr's.  She stayed
with us at home for 68 glorious days and we were able to make memories that
we will treasure for a lifetime.
 
Ashley has only been gone for 3 and a half weeks and it seems like a
lifetime.  I miss her so much!  I know the pain will not be as sharp over
some time, but right now it seems to get worse every day.  I know you can
all relate to how I am feeling.  It is good to know there is somewhere I can
go to speak to people who understand.
 
Love,
 
Tiffany - Mom to Ashley Grace (T-9 1/20/04-3/28/04) and wife to Chad
 
"For everything God created is good, and nothing is to be rejected if it is
received with thanksgiving..."   1Tim 4:4 NIV

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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