[tri-wings] Re: Gavin, my son

 

Hi Jamie! 

I absolutley understand your pain, I too lost our son, Kenton to T-13, March
6th after almost 5 months he contracted phemonia and passed away after 3
daysof suffering from it, he also contracted group B strep. 

He had the classic t-13 look, did your child? We took did not know anything
until he came out in to the world. Did you have sonograms? I  had 2. 

Well now we are pregnant again and have done every test possible, we are
having another boy healthy, normal in August. We did the amnio, and had a
level 2 sonogram May 7th. 

Keep your spirits up and I am thinking about your family. 

Take Care, 

Niki

>From: "j wheeler" >Reply-To: tri-wings@xxxxxxxxxxxxx >To: >Subject:
[tri-wings] Gavin, my son >Date: Wed, 23 May 2001 10:00:26 -0600 >>Hi my
nameis Jamie Wheeler and I just wanted to say hi to everyone and to let you
know that I have just gone through. On April 3, 2001 I went to the hospital
and gave birth to a baby boy. he was not breathing very well on his own so
they had to intubate him. After sending him to Sacred Heart hospital in
Pensacola, FL. They had done numerous test on him a was waiting on the
genetics test to come back, which would be about 4 days. In the mean time
they were telling my husband and I that he may have Trisomy 13. During my
whole pregnancy nothing was ever found. He had heart problems and kidney and
lung problems also.To have carried my child for nine months and then give
birth to found that he does not have a high chance to live, just hurt me
likenothing before. I have been receiving and reading emails from everyone
for about a month and I just wanted everyone to know I am going through the
same things. On April 6 @ 7:30pm we received a phone call while in our hotel
room that Gavin did have T-13, on this same day my sister gave birth to a
healthy baby boy, this the same day my husband and I had to tell doctors
thatwe would take Gavin of the ventilator. On 10 April he passed away while
his father was holding him. On 13 April we put him in his final resting
place. Buried at the foot of his great-grand-parents, to the right of his
Uncle Bob, and to the left of three infants of my grandparents. He his at
home now. >Thank you for having somewhere where I can go and write what I
feel and to let out the hurt. >Thank you very much, >Jamie, Jeff, and Devin
(our other son) Wheeler >>Building ___ooOOoo__ Rainbows
>www.trisomyonline.org >Families Helping Families On-line 

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