[tri-wings] Re: Fwd: Sky has joined Analee

i am so sorry to hear of Skys loss.  It an gauls me to hear of what the medical 
community did to her.  
Why do they do such things?
i cannot imagine how hard it must be to lose to two children.

Erin
mom to Tyler Joel
3/3/06 
t-18 angel
>From: S3219@xxxxxxx
>Date: 2006/08/29 Tue PM 05:44:20 CDT
>To: tri-wings@xxxxxxxxxxxxx, hmmmcormick@xxxxxxxxxxxxx
>Subject: [tri-wings] Fwd: Sky has joined Analee

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>Sun, 27 Aug 2006 03:49:58 -0400
>Date: Sun, 27 Aug 2006 03:49:58 -0400
>From: S3219@xxxxxxx
>To: s3219@xxxxxxx
>Subject: Sky has joined Analee
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>Dear Family and Friends,
>
>Once again we are left facing the loss of a child. Our Sky was officially 
>pronounced dead at 10:35 p.m. Saturday August 26th. 
>Just yesterday, Friday she was fine. I took her to the clinic at noon for a 
>UTI and noticed that her shunt was not working properly as it has done many 
>times before. We continued on our afternoon while I periodically pumped the 
>shunt by hand. By 3p.m. it was clear that the shunt was malfunctioning and 
>would need to be replaced again as we had done 8 times in the past 2 years.At 
>4:50 p.m. we drove to the cities and were forced to go to St Paul Childrens VS 
>Gillette where all of her previous surgeries have been done. The weekend 
>policy is to divert patients to better staffed  operationg rooms on the 
>weekends. Unfortunately Skys Neurosurgeon was not on call this weekend and the 
>on call Dr. would'nt listen to me regardless of how hard I tried to convince 
>him of a shunt malfunction. Instead, he ruled out her rapidly declining 
>condition as a UTI. 
>Ultimatly, within 6 hours of her admition Sky was brain dead due to a shunt 
>malfunction which could have been treated with the same surgery she has had in 
>the past.  
>Legal issues require extensive testing to prove that there is no brain 
>activitiy which is part of the reason that it took an additional 22 hours to 
>reach the point we are at now.
>All testing is now complete and I have given consent for the organ donation 
>team to begin their work to find possible uses for her organs. This process 
>generally takes about 24-36 hours before all of the procurement teams are 
>flown here to retreve the viable organs.  After that, Sky and I will return to 
>St Cloud and we will hopefully have a service somewhat similar to Analee's. I 
>would imagine we will look towards Thurs or Fri?? 
>Obviously things are very up in the air at this point, as we don't know if any 
>organs will be used, or how soon, and when the church might be able to help us 
>with another funeral.
>I appologize for sending this out via email but I can't begin to consider 
>making phone calls at this point. Morgan and I are in such disbelief that it's 
>tough to carry on calls to each other that make much sense.
>Please keep Sky in your prayers as well as Tony and Ian as they try to cope 
>with the confusion of their ever increasingly quiet household. Please too 
>remember to include our Analee in those prayers as she has only been gone 
>since last month.
>
>Nancy
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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