[tri-wings] Re: Barb

i so sorry thay looked at it that way as its not fair to our kids . I can 
tell you taylor is what kept me going after i lost there dad as i was 5 
month p.g. with him . I could of lost it but he is what kept me going. and 
still does gina son taylor triosmy 8 mosaic
----- Original Message ----- 
From: <midwifehelp@xxxxxxx>
To: <tri-wings@xxxxxxxxxxxxx>
Sent: Tuesday, August 12, 2008 5:19 PM
Subject: [tri-wings] Re: Barb



I read the whole thing, and the original Mencap report as well. I know it is 
shocking to so many to read these types of things, but it is the reality 
that families with children with T13 and T18 face every day, as well as 
those who are pregnant with a child with either.
Sometimes I think that the fact that my daughter's life was considered so 
unvaluable to all the health care practitioners we worked with, at two major 
children's hospitals, was harder than her actual diagnosis. I accepted her 
for who she was and it did not matter what she could or could not do, she 
was my daughter no matter what. Of course I would never have chosen for her 
to have T18, but we do not get to choose that. She had it, and that was 
that.

I had a lot of medical knowledge at the time of her birth and death, being a 
Licensed Midwife, but now in school to be a Physician Assistant, I have 
learned so much more. I now know how severely they mistreated her, medically 
and ethically and the exact waiting game they played with us, until things 
got so bad there was nothing left to do. It is shameful and awful that it 
happens every day, in every part of the world.

Losing a child, as we all know is the hardest thing to bear, losing a child 
that?others do not?value is even worse. That is why it is so nice to "be" 
here with all of you, that understand that though our children were not 
perfect, we loved them and made the decisions we made based on that love and 
what we truly felt was best for them.

Bess


-----Original Message-----
From: Barbara Farlow <b_farlow@xxxxxxxxxxx>
To: tri-wings@xxxxxxxxxxxxx
Sent: Tue, 12 Aug 2008 3:40 pm
Subject: [tri-wings] Re: Barb



Here is the article that provides a url to the recent inquiry that was done 
in
the UK.
http://icad.wordpress.com/2008/08/05/death-in-care-of-the-national-health-service/

Barb



> From: demipowell@xxxxxxxxxxx
> To: tri-wings@xxxxxxxxxxxxx
> Subject: [tri-wings] Barb
> Date: Tue, 12 Aug 2008 19:20:57 +0000
>
> Barb
>
> I'm interested!
>
> Interestingly I know quite a few children in the UK who have had good 
> care,
including surgical treatment and resus.  But I'm not sure what the overall
picture is.  And I'm pretty sure most hospitals still push termination/DNRs 
at
birth.Demi > A private inquiry on the medical treatment provided for people 
with
developmental disabilities in the UK just came out. If you are interested, I
will send you the link.> > Barb
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If you like crossword puzzles, then you'll love Flexicon, a game which 
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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