[tri-wings] Re: Balloons, etc

>THANKYOU!!!!!!!!!!!  Its very much appreciated.  I look forward to catching
>up more on all the news. 

Demi 

Okay, then send me your snail mail address, OFF LIST please, so as not to
upset "the crazy Brit", at fawna33@xxxxxxxxxxxxxx so I can send you the
keepsake tag.


Fawna, mom to Philina 23 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes 
(TRIS) project - We are currently enrolling all varieties of rare
trisomy, living & deceased, for the main project database.  To 
include your child's data and help update the medical literature 
please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page 
please see: http://www.livingwithtrisomy.org/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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