[tri-wings] Re: Balloon release - Fawna

>Fawna, Can you add one more angel to your list and possibly release
Brittany's
>balloon?  I emailed Jack my info and I know someone will release her
balloon,
>but I would feel so much better if a friend did it. Please let me know if
you
>can and if you need any info from me.  I know you might have my address
from
>the survey I took, but I have moved since then.

Robyn & others still waiting for someone to release their child's balloon,

Kelly Freeze, her mom and 4 yr old daughter Akaiya T18 from Tri-med are
releasing Brittany's balloon.  They will also be doing GABRIEL EVAN MARTIN
Leslie Serina, and Jordan Nicholas Pratt-Yates.  I've sent her the e-mail
addy's & mom's names, so ya'll should be hearing from her about where to
send
the souvenir balloon tags.

But could you send me your new address off list too Robyn and I'll update it
in the project's database.

Of that original list of 8 balloons that I sent off to the family & med
lists
a couple of days ago, 6 got releasers, and 1, maybe 2 more got added to the
list,
so my boss Debbie, and Doug, Philina & I will just be releasing those along
with
the 4 we'd already committed to.  That means we're doing:

Kaden James Bieck (I don't know his diagnosis)
Emily Boneham T18
Christian Deaton T13
Rebecca Hardy T18m (Red Balloon please)
Kameran Blake Hayes T1q
Emma Grace Johnson (I don't know her diagnosis)
Joan Taleshi T18
And maybe Tyler Biffis T13, if Dana can't handle that one too.

Anyone who hasn't submitted their requests to Jack Laird for a balloon
please do
so now.  Here is the form again and his e-mail: jlaird@xxxxxxxxxxxxxxxx
(server
is rochester.rr.com in case the e-mail doesn't all come through).

Child's name:
Date of Birth:
Date of Death:
Disorder:
Your Name:
Relationship:
Address:
City:
State or Province:
Country:
Who Is Releasing Balloon (if known):

And if LouAnn, Marianne, Pam, Julie & Atousa could send me their addresses
off list
too, as well as birth & angel dates and the 2 diagnosis I'm missing, that
will be
most helpful.  fawna33@xxxxxxxxxxxxxx (server is @ mindspring . com ).  I'll
be taking
off to drive to conference 1st thing Monday morning, but I'm taking my lap
top with me
so never fear, if you send it after that I'll still get it.

Fawna, Research coordinator TRIS Project, mom
to Thom & Rhonda, Lara, & Philina 24yrs (PT6p
& Moya Moya Syndrome), Escondido, CA USA
http://home.mindspring.com/~fawna33/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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