[tri-wings] Atouching story

 Hi Everyone   I was very moved by Catherine's beautiful words today on the
tri-med site (restated below), and thought I would share some background. I
wrote a letter to Annie's primary pediatrician, a doctor whom we placed
greattrust and even assumed a friendship existed. Unfortunately, the records
reveal a defile of this trust and friendship. It is quite apparent that this
physician knew that Annie's respiratory distress was due to her trachea
closing. He denied her the option of any treatment whatsoever; surgical
repair or palliation. He did nothing.   I wrote him a long letter, which
included the line:   Annie was not perfect in the traditional sense, but for
the purpose for which God made her, she was perfect.   Catherine was
thinkingabout these words when she ran to the WalMart and took a short cut
through the toy section. The doctor to which she makes reference is
currentlythe head of cardiology of a large Toronto teaching hospital.   I
wasso moved by her words that I forwarded them to our geneticist, the senior
neurologist who is conducting a full review of Annie's records and the Vice
President who is overseeing the review. I hope they have even half of the
effect on them as they have had on many folks on the tri-med site so far.  
Barb  Mom to Annie 05/25/05-08/12/05     I saw a dad today, at Wal-Mart.
He was with his severely disabled daughter.
They were in the toy section.
He was showing her all kinds of neat stuff.
She was smiling and waving her hands.
She looked like she was having a wonderful time.
So did her dad.
She was in a wheelchair
and had a ventilator
and he had to keep suctioning her.
If her purpose is to help her dad to become all that he can be
and far more than he could ever have imagined, she is perfect.
Once I took Bec to a specialist who always had a flock of residents in tow.
He said, "We're not going to fix her so we don't need to know
what else is wrong and you don't need to come back"
Ever since then I have thought about him and what he missed out on.
If Becky's purpose here on earth was a final exam for this specialist
and one day when he stands before God
and tries to point out the hundreds of doctors he has trained,
or the hundreds of patient's lives he has extended or improved,
God will stop him and say, "No, none of those count.
Only the one that I sent to you. What did you do to help her?
How did you extend or improve her life."
If her purpose was to help this doctor become all that he could be
and far more than he could ever have imagined, she is perfect.

Catherine, mom of Becky (31yrs. Trisomy 13 Mosaic)




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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