[tri-wings] Re: Alex

----- Original Message ----- 
From: "Demi Powell"
> Sorry to hear Alex is sick!  (Im sure I must have not been reading well to
> have taken so long to click onto this).  Whats up with my boy???? 
> Anything
> we can do to help?

Hi Demi,
Its nice to see you back.
Unfortunately I don't think that there is anything that anyone can do to 
help Alex at the moment. His health is far from good I'm afraid and he is 
certainly keeping me on my toes. His blood pressure is just getting higher 
and higher. At the moment we are doing test after test to see if there is 
anything that can be done but its not looking promising, certainly not 
without a huge fight. As of yesterday we may not even be able to do that as 
he has come down with the chicken pox again. Second time in 6 
months......... and he has had the vaccination plus one other bout of 
chicken pox a few years ago. Guess his titres were right, he just didn't 
develop any immunity from any of it.

At the moment its not the itching or any of the usual symptoms that are 
bugging him, but the headaches. Trying to work out if its his blood pressure 
thats causing the headaches or the chicken pox is not easy. Its not 
encephalitis at the moment but I am scared that it will go to that. 
Personally I'm not sure his immune system can cope with fighting it this 
time on top of everything else, all I can do is stand with him and be 
here........ and fight the best way I can.

Alex is fine in himself. He is just upset that I have had to cancel picking 
up his new hearing aids tomorrow and the visit to the Stick Insect man next 
week :-) He so badly wanted to see the Lord Howe Island Sticks (there are 
only 5 left in the world and this guy has two that he's breeding) and to do 
some stick nymph trading :-))) My son the animal lover......... I have 
already had to reassure him that the new pup can't get chicken pox from him, 
and that it wasn;t his new chickens that gave him the chicken pox!!!

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (11 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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