[tri-wings] Re: A very nice passage about special children. (Religion mentioned)

>>>>>>>>>>>>This is my first time writing to the tri-wing list due to the
fact we have been very busy caring for our son Evan Reese Utsman who was
born on 10/4/08 and diagnosed with Mosaic Trisomy 18. We have been on a
roller coaster ride if you will since his birth, some days he does
spectacular, others very poorly<<<<<<<<<<<<<<<<

Sorry you had to find us but glad you did join in. I really hope Evan does
well and know that we are all here for support even if you just need to vent
( we are especially good at venting )  My Rebecca had 
T18 M as well and she lived to be 14 1/2 years old and was never
hospitalized for illness only surgery tests and broken bones.  Its been
almost 3 yrs since she passed and we miss her every  day 


Susan Mom to Rebecca T18 M 6/6/91-5/2/06 and Mark ADD/LD age 16



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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