[tri-wings] Re: A very nice passage about special children. (Religion mentioned)

Hello Barbara,
Thank you for the very inspiring message. This is my first time writing to the 
tri-wing list due to the fact we have been very busy caring for our son Evan 
Reese Utsman who was born on 10/4/08 and diagnosed with Mosaic Trisomy 18. We 
have been on a roller coaster ride if you will since his birth, some days he 
does spectacular, others very poorly. He has been continuing to have Breath 
Hold episodes that can last several minutes and still struggles with the tube 
feedings; however, I just wanted you to know that your email really touched us 
and has "re-energized" us to work through the crying, 2hr feedings, and little 
to no sleep. Because he is the most amazing little guy and we love him 
"purely"..!!!!
Thank you again,
Forrest and Karen Utsman (parents of Evan Resse Utsman - Born 10/4/08 with 
Mosaic Trisomy 18)

  ----- Original Message ----- 
  From: Barbara Farlow<mailto:b_farlow@xxxxxxxxxxx> 
  To: triwings<mailto:tri-wings@xxxxxxxxxxxxx> ; tri med 
lists<mailto:tri-med@xxxxxxxxxxxxx> 
  Sent: Monday, November 17, 2008 11:21 PM
  Subject: [tri-wings] A very nice passage about special children. (Religion 
mentioned)


  Hello,

  The Jewish mother of a disabled son with a genetic condition sent this to me 
today. I think it is a beautiful way of understanding out special children. I 
especially appreciate the idea of "pure love". I am sure you can all relate, 
regardless of your faith.

  (IsraelNN.com) Question
  A friend gave birth to a baby with a rare condition that has rendered
  her severely handicapped. She is not
  expected to live much past her tenth birthday. I just can't understand
  why G-d does that. If life has a purpose,
  what is the purpose of such a short and sad life?

  Answer
  Every birth is a gamble. A soul enters the world innocent and pure.
  But it may not stay that way. This world is
  maze of diverging pathways, both good and evil, and the choice is ours
  which way we go. Once a soul enters a
  body, it is free and therefore vulnerable to corruption. While acts of
  good elevate the soul, every act
  of evil makes
  a blemish on the soul.
  Some souls are so pure, it simply isn't worth the gamble. These souls
  are too precious to risk being compromised
  by life in a body. They are too high to come down to this world. But
  the other option, not to be sent down at all, to
  never reach this world, would mean that we would miss out on meeting
  these holy and lofty souls and hearing
  their message.
  So these souls do come down. But in order to be protected from the
  potential evils of an earthly existence, they
  are sent down into a body that will not compromise their holiness.
  They enter this world in a form that is above
  sin, above evil. From a purely physical perspective we call them
  disabled or handicapped; from the perspective of
  the soul, they are protected. They will never sin. Their sojourn in
  this world is often brief and, in terms of this
  world, may seem sad. But they have retained their purity. And
  they
  have fulfilled their mission.
  These special souls remind us that true love doesn't need a reason. We
  often love others for what they give us -
  we love our children because they are cute, smart and high achievers;
  we love our spouse for the pleasure and
  contentment they give us; we love our parents because they care for
  us. This is love, but it is not pure.
  When a child is born that will never achieve worldly success, cannot
  provide the usual source of pride for her
  parents, all extraneous reasons to love her fall away and what's left
  is the purest love that there can be. These
  children are lovable not because of what they do for you, and not
  because of what they will one day become, but
  simply because they are.
  These pure souls remind us what love should be. Only such a pure and
  holy soul can elicit such a pure and holy
  emotion. We can only stand in awe of them, and the parents and friends
  who
  care for them. And we can only
  thank them all, for giving us a glimpse of what true love really means.
  © Copyright IsraelNationalNews.com
  Subscribe to the free Daily Israel Report - sub.israelnn.com
  Cheshvan 6, 5769, 04 November 08 07:08
  www.IsraelNationalNews.com<http://www.israelnationalnews.com/>


  _________________________________________________________________


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