[tri-wings] Re: A letter from above :*(

>but it would have been nice to see him in his very own new little clothes
and there would have been more keepesakes for me too<

((( Shelly ))) and all -
"A letter from above" has been put away in a folder for me, for reading at a
later time...going through quite a bit with my ex (still) and trying to
avoid some of the "painful" stuff in my life (probably just shoving it down
further for a little while..) BUT, I wanted to say that I also will tell
different people that I have 3 or 4...depending on how well I know the
people or even how well I want to know the people.  When you have a child
with Trisomy, and then lose them, it's difficult enough to explain what
happened to people who have never been through it. But then to explain that
I'm a carrier, and that two (maybe all 3) of my living children are
carriers, just sometimes get to be too much.  So, I reserve that
conversation for people I might want to get to know better.  The rest just
get, "oh, I have 3 beautiful children living".  Jordan (^i^) understands....

As far as clothing and comments, I had the same as most of you.  A baby
shower the day before produced all PINK stuff (since Jordan WAS supposed to
be my little girl baby...) therefore leaving him with alot of hand-me-downs
as well.  But, here's a small secret from me...my best friend in the entire
world, who I have known since 2nd grade...is the only one of my friends that
came to see us in the hospital, wanted to see and hold Jordan, cried with
me...and then bought him the cutest little christening outfit!  Here's the
secret part.  I went with my sister to the mall after he passed away - and
selected my own "gown" for Jordan to spend his heavenly slumber in - and it
was beautiful - gorgeous as a matter of fact - and very pricey.  But that
cute little christening outfit?  Ladies, it is still in it's zippered
see-through bag - tags and all - hanging in MY closet.  It's the only
article of clothing that I have held on to from ANY of my 3 boys!  AND, the
outfit is 17 years old!  It's just something so dear to me - it holds no sad
memories - and I'm not even upset that Jordan didn't wear it.  It represents
a friendship that never fails - a faith in my son that he might wear it, so
it was important he have one - and the fact that it wasn't a hand-me-down
and belonged only to him, that keeps it in my closet.

Whew - here I was fixin to (a Texas term meaning getting ready to) say that
I won't ramble on because of my "down" mood right now - and look where it
got me!
Talk about RAMBLING...

Things are looking up...thanks for your thoughts and well wishes - and
Darcy?  Thanks for reminding me that there truly is a rainbow after the
storm.  Send some of your new "good man" 's brothers or friends back down to
Texas - and then at least one over to Mandy's house...  :)

'DANCE' like no one is watching, 'SING' like no one is listening - and
'LOVE' like you've never been hurt.....

Teri  - Dallas, Garland, Texas, US of Great A
Mom to John (19), Jordan Nicholas (04/01-04/13/85 ^i^ T13), Chris (16), Tori
(8), and Artemus the Black Tom Cat >'.'<
Jordan's memorial:   http://www.geocities.com/prattyates
John & Chris's pages with their Dad & Cindy:
http://hometown.aol.com/cdcpratt/index.html
Lean about Trisomy & SOFT:  http://www.trisomy.org/
Learn about Trisomy 13 & Rainbows down under:
http://homepages.tig.com.au/~karens/t13.html

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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