[tri-mosaic] Re: Sacral Dimple

Hi Tammy:

For us it has always been given intra-venously.

Nora

On Aug 12, 2008, at 10:53 AM, Shawn & Tammy Armstrong wrote:

> Nora,
> Thank you for your reply.  Is the propofol given orally or is it  
> given with
> an IV.  I've been told by some that there children have been given  
> oral
> sedation and told by others that it is given by an IV.
> Thanks so much!
> Tammy Armstrong
> ----- Original Message -----
> From: "Nora Funaro" <bride1931@xxxxxxxxxxxxx>
> To: <tri-mosaic@xxxxxxxxxxxxx>
> Cc: "Nora Funaro" <bride1931@xxxxxxxxxxxxx>
> Sent: Tuesday, August 12, 2008 7:12 AM
> Subject: [tri-mosaic] Re: Sacral Dimple
>
>
>> Hi Tammy:
>>
>> My daughter has trisomy 18, and doesn't have the specific
>> characteristics you mentioned, but she has had many, many MRI's and  
>> CT
>> scans under anesthesia - from age 18 months to age 9 years - my guess
>> is about 50 times in all.  She has always been given propofol (this  
>> is
>> the correct spelling).  We never had a problem with it:  it works  
>> fast
>> and she's just a little bit harder to wake up than from a regular  
>> sleep.
>>
>> Good luck to you!
>>
>> Nora Funaro
>>
>> On Aug 12, 2008, at 1:21 AM, Shawn & Tammy Armstrong wrote:
>>
>>> Hello!
>>> I'm still a "newbie" here.  I haven't really posted much, just
>>> usually read all of your posts.  My little boy is Trisomy 8 Mosaic.
>>> He is doing very well, he is healthy.  His main struggle as of right
>>> now is being developmentally delayed.  He is 5 yrs old and we have
>>> had many tests on him, since we have had his diagnosis.  Just when
>>> we thought we had done every test there is............we now are
>>> told by our pediatrician that she wants Cayden to have an MRI due to
>>> his Sacral Dimple.  We will have the MRI done @ Children's Mercy
>>> here in Kansas City on September 30th (that is the soonest they can
>>> get us in).  Cayden has not had any problems with his Sacral
>>> Dimple.  I have done a lot of research on it, so I feel like I am
>>> well informed, but I was wondering if anyone here has dealt with a
>>> Sacral Dimple?  If so, please share any information you may have.
>>> We meet with our pediatrician again on September 11th, to discuss
>>> sedation options.  This whole sedation thing scares me, as Ca
>>> yden has never been sedated before.  If you can share any info on
>>> sedation with me I would greatly appreciate it.
>>> Also.......................Absence of the Corpus Callosum.  If
>>> Cayden had this would we know it by now......or is it only diagnosed
>>> by having an MRI.  Should we be requesting an MRI for this too???
>>> Please Advise.
>>>
>>> I appreciate all input.
>>> Tammy Armstrong
>>> (Proud Parent of Cayden, T8 Mosaic)
>>>                 Building ___ooOOoo__ Rainbows
>>>                      www.trisomyonline.org
>>>                 Families Helping Families On-line
>>
>>                 Building ___ooOOoo__ Rainbows
>>                      www.trisomyonline.org
>>                 Families Helping Families On-line
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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