[tri-mosaic] Re: How is Everyone?

Hi There,

Thought I'd add an update on our family too.

We are nearly at the end of a "winter-from-hell" - Tegan's worst health-wise
by far. She's been hospitalized 4 times in the last month, mostly
pneumonia/chest infections, though we managed a rota-virus as well.
Currently home and nearly back to strength. She's still on oxygen 24 hrs a
day, though was making good progress on working it way down to 0.1
litre/minute before her latest pneumonia. Oxygen was up to 2 litres/minute
for a few days in hospital in order to maintain satisfactory saturations,
though now back to 0.3.

In between all this sickness, I managed to jet off to the UK for a holiday,
leaving Shane behind to cope with the family!

Developmentally, Tegan's sitting on the floor unsupported for long periods,
sometimes half an hour. She also rolls about sometimes. Speech is not really
happening, and her comprehension is a big question mark. Still she's always
happy, and very tolerant of her younger sister, Jordan, who gets a bit rough
with her at times!


Linda & Shane Oxenham
New Zealand
(parents of Tegan 2 years (mosaic partial trisomy 1) & Jordan 11 months)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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