[tri-med] Re: what to say/not to say

In a message dated 10/31/02 11:05:13 AM Eastern Standard Time, 
jwaite@xxxxxxxxxxxxx writes:


> I thank my
> lucky stars the people care enough about us to try and offer words of 
> wisdom
> or comfort.

I too felt very good about people trying to make us feel more comfortable.  
They may not know what to say but just asking was important to me.  The 
people who really got to me were those who would just ignore the situation 
altogether.  I had a very close friend who basically avoided me all through 
my pregnancy, but as soon as Hannah was alive and healthy she started calling 
me again.  I have never brought it up but it really hurt me.

My problem now is that since Hannah doesn't have any outward physical signs 
of t-13, people say to me, "So the doctors were wrong", or "so she doesn't 
have it." Ugh!
Then I have to go through the whole explanation of t-13 and mosaicism, etc. 


Kristin - wife to Bryan, mom to 2 year old Hannah - t13 mosaic w/ 
Robertsonian translocation, and Brennan Joseph - 6 months old, in Atlanta, 
Georgia, USA
Come and see us at:  http://hannahclare.homestead.com/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: