[tri-med] Re: what to expect if we go full term

Jenn,

We have also been prenatally diagnosed and our genetic counselor referred us 
to hospice, specifically for assistance in constructing our birth plan.  I 
am new to this, too, but I am hoping they will be tremendous help (having 
more medical knowledge than my husband and me, but not the "agenda" that the 
medical community may have).  Also, I'm sure many people will offer up their 
birth plans to reference, so don't hesitate to ask.

Becca
(23 weeks with full T13 boy bun in the oven)

>From: "jwaite" <jwaite@xxxxxxxxxxxxx>
>Reply-To: tri-med@xxxxxxxxxxxxx
>To: <tri-med@xxxxxxxxxxxxx>
>Subject: [tri-med] Re: what to  expect if we go full term
>Date: Fri, 27 Oct 2006 11:05:18 -0400
>
>
>----- Original Message -----
>From: "Jennifer ayers" <jennenergy@xxxxxxxxxxxxx>
>
> > we are 22 weeks with T-18 and struggling with what to expect if we go to
> > term and deliver
>
>Hi and welcome Jenn! Glad you've found us but sorry that you had a reason 
>to
>do so.
>
>Nobody, and I mean nobody, can tell you EXACTLY what to expect. Like with
>every other segment of the population, each trier is a unique individual.
>
>The prenatal testing can show problems/issues but the true extent of them
>can't be known  until birth.
>
>One thing that those who had a prenatal diagnosis have done is make up a
>'birth plan' that they then shared with all the medical professionals PRIOR
>to the birth so that their wishes were known.
>
>The first step is for you to gather information (like you are doing).
>Discuss it with your hubby and make sure you are both on the same page.
>Decide, with as much ability as possible before hand, what you want done,
>what you don't want done, what options you would like presented to you.
>
>I'm sure those who had birth plans will pop out with info is you ask.  :0)
>We didn't have a prenatal diagnosis so I'm no help there.
>
>Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (15)
>MichiganUSA
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

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