[tri-med] Re: what to expect from our kids

----- Original Message ----- 
From: "rachael larson" <rlarson_22@xxxxxxxxxxx>

> The great thing for Aleah is that she has made a close friends with a 4yr 
> old in her stepping stones class. This little girl, Amanda LOVES Aleah and 
> talks about her to her mom all the time. They sit together at snack and 
> instinctively Amanda "spots" Aleah when shes climbing up to go down the 
> slide ect. The best part is shes encouraged Aleah to go down on her own 
> and do things that Teachers nor I could get her to try cause shes a 
> chicken sh*t.
> Amanda has a younger sister, and so I think thats part of the reason 
> theyve formed the friendship they have. I am hoping that Aleah can 
> continue to be >in class's ( preschool next year) with her, we will see.

Alex had more acceptance and ability to fit in with his peers when younger. 
Very young children are less judgemental as a rule.

The older Alex became the more he was leftout, not in a mean way but in a 
left behind way. He just isn't quite where they are.

>  We got our test results from Aleah's bone age scan... it came back at 
> about a 3 yr old level, of course Aleah was 3yrs 7months at the time of 
> the scan so she does have bone growth delay. Anyone have any info or 
> suggestions???? I think the next step would be GHT, but I am unsure if we 
> will do it......

For a true diagnosis of GHD (Growth Hormone Deficiency) you must have 2 
different tests showing the diagnosis.
It sure does seem to be something the tri-14 children seem to have though.

In our case if was a bone age study (the x-ray of the hands/wrists) and an 
out-patient 5 hour testing of clonadine/argenine.

If you want to check out more info on growth delays go to 
www.magicfoundation.org

Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (16)
MichiganUSA



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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