[tri-med] Re: what to expect from our kids

 
 I also wonder this from time to time with Aleah.... does she know shes 
differant, expecially since shes now in with kids that are at least a head 
taller and 10 plus pounds heavier ( even though shes there age ).
The great thing for Aleah is that she has made a close friends with a 4yr old 
in her stepping stones class. This little girl, Amanda LOVES Aleah and talks 
about her to her mom all the time. They sit together at snack and instinctively 
Amanda "spots" Aleah when shes climbing up to go down the slide ect. The best 
part is shes encouraged Aleah to go down on her own and do things that Teachers 
nor I could get her to try cause shes a chicken sh*t. 
Amanda has a younger sister, and so I think thats part of the reason theyve 
formed the friendship they have. I am hoping that Aleah can continue to be in 
class's ( preschool next year) with her, we will see.
 
  We got our test results from Aleah's bone age scan... it came back at about a 
3 yr old level, of course Aleah was 3yrs 7months at the time of the scan so she 
does have bone growth delay. Anyone have any info or suggestions???? I think 
the next step would be GHT, but I am unsure if we will do it...... 
 
 Rachael mom to Jeremiah, Aleah and Lily
Rachael Larson
> From: saatsmom@xxxxxxxxxxx> To: tri-med@xxxxxxxxxxxxx> Subject: [tri-med] 
> what to expect from our kids> Date: Mon, 23 Apr 2007 16:56:27 -0500> > > 
> Ohhh, that makes me sad in some ways. Actually, it makes me sad that all> 
> people aren't like him. Thay would make for a great world wouldn't it? I> 
> justworry about what Julian will have to face as he grows. I guess it's> 
> sillycause he's so young and who knows how he'll be. Thank you for sharing> 
> all that with me. I guess it gives me some hope but as I said earlier, it's> 
> sad too. I wish people could be kinder. Once again, thanks Michelle. > > 
> Karen, Julian's grandma mosaic partial trisomy 1> > > 
> ----------------------------------------------------------------------------> 
> From: "jwaite" <jwaite@xxxxxxxxxxxxx>> Reply-To: tri-med@xxxxxxxxxxxxx> To: 
> <tri-med@xxxxxxxxxxxxx>> Subject: [tri-med] Re: orthodontics> Date: Mon, 23 
> Apr 2007 13:34:35 -0400> >> >----- Original Message -----> >From: "Karen T" 
> <saatsmom@xxxxxxxxxxx>> >>Michelle (Alex's mom),> >>I'm just curious if Alex 
> is aware that he's "different" (for lack of> >>better> >>term)?> >> >Yea, 
> sometimes finding the 'better term' is difficult at best......trying> to> 
> >convey an idea but be tactful/politically correct! lol> >> >I had to stop 
> and really think how to convey my answer, not always> something> >easy to do 
> with the written word.> >> >The answer is both yes and no.> >> >No in the 
> respect that you can't miss something you don't know exists. Alex> >feels 
> he's Alex, much the same way as most of us feel about ourselves. In> >that we 
> are all different to some degree.> >> >Also, Alex is much like his Daddy in 
> temperament/emotions, very laid back> >and accepting of things. Alex's 
> personality isn't one to dwell (not often> >anyhow) on the bad or negative.> 
> >> >I do believe that Alex internalizes some things, people who are 
> mean/make> >disparaging comments etc hurt him but he doesn't get mad or 
> complain.> >Sometimes I have to literally pull out of him what he feels about 
> things.> >And often he doesn't quite now how he feels as he doesn't totally> 
> comprehend> >what 'it' (the situation, remarks etc) means.> >> >Yes in the 
> respect that he sees the differences especially when looking at> >his peers. 
> They date, they grew tall (taller than Alex is anyhow, and that> >can be 
> relative), they grasp more of the nuances of discussions and life.> >Alex 
> recognizes that he doesn't have some of what most others have. Hope> I'm> 
> >making sense here!!!!!!!!!!!> >> >Alex has developed coping skills. He'll 
> laugh at things, appropriately,> >while not understanding what's funny. Took 
> me a while to catch him on that.> >> >If Jim, Molly and I are having a fast 
> paced and revolving conversation on> >say, politics or science, Alex 99% of 
> the time doesn't have a clue as to> >what we are talking about. But he 
> listens and occasionally asks a question> >or makes a comment (often not one 
> that's on point or makes sense in the> >scheme of the discussion). He doesn't 
> appear to feel left out.> >> >In many ways Alex is more like an 8-10 year old 
> in his general life> >knowledge and conversational abilities. "Deep" 
> discussions tend to go over> >his head.> >> >Alex is certainly a more 
> compassionate and understanding teen compared to> >many of his peers though. 
> :0) He has an innate ability to see> >the.......humanity....of individuals.> 
> >There have even been times when someone has dised him (quite obviously) but> 
> >Alex will say "maybe he's having a bad day". In that respect he's a better> 
> >person than I am!!!!!!!!!> >> >In many ways Alex is, and it appears to 
> probably be a life long thing, a> >youngster. He sees the world in that way 
> and thinks in that manner. But> it's> >all he 'knows'........and most of the 
> time he's fairly content with his> >place in the world.> >> >Alex does know 
> of his genetic status, something we waited to explain to him> >3-4 years ago. 
> I don't think he completely grasped the whole picture, of> >course, we also 
> explained that EVERYONE is different and that some people> >have issues that 
> he doesn't (in terms of general population, like> accidents,> >abuse, 
> self-destructive behavior).> >> >Gee, I hope that I've explained this 
> somewhat coherently! It's a hard> >concept/situation to explain in one 
> e-mail.> >> >If you/anyone else have questions, please ask.> >> >Michelle mom 
> to Alex (19, partial trisomy 14 mosaic) and Molly (16)> >MichiganUSA> >> >> 
> >> > Building ___ooOOoo__ Rainbows> > www.trisomyonline.org> > Families 
> Helping Families On-line> >> > > 
> ----------------------------------------------------------------------------> 
> Need a break? Find your escape route with Live Search Maps.[1] > > --- Links 
> ---> 1 http://g.msn.com/8HMBENUS/2731??PS=47575> Building ___ooOOoo__ 
> Rainbows> www.trisomyonline.org> Families Helping Families On-line> 
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