[tri-med] Re: we are never going home

Sending prayers that Morgan contines to improve and you get to go home soon!  
I'm glad he seems to be receiving good care.

Julie, wife to Scott, mom to angel Emma (t18) and Kyleigh Jo (born 1/31/06)


 
> From: hollyandms@xxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] we are never going home
> Date: Thu, 19 Mar 2009 11:04:34 -0500
> 
> It certainly feels that way right now. The dr told us that Morgan is 
> progressing faster than she expected, but she is being cautious weaning him 
> off the vent. He was so hard to intubate so they don't want to take him off 
> until he is ready. Dr. told us he will be on the vent for a few more days. 
> She didn't want to say how much longer the hospital stay will be. Today more 
> settings are being changed on the vent so Morgan is moving forward. 
> 
> On a side note, the dr. who was here last weekend said that he has been 
> following, off and on, a girl with t18 in MS who is 18 yrs. old. I think I 
> heard them say her name is Courtney? He said they also had seen a small 
> child, maybe a baby with t18, too. One of the nurses that has been with 
> Morgan most of the time has a daughter with liscencephaly, that has caused 
> her to be severely disabled. 
> 
> ?You have no right to argue with your Creator. You are
> merely a clay pot shaped by a potter. 
> The clay doesn?t ask, ?Why did 
> you make me this way??? (Isaiah 45:9 CEV).
> 
> 
> 
> Holly ( Des Moines, IA) -- wife of Mike 
> mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial 
> t18q and partial monosomy 9p 
> dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
> twice daily,novolog
> 
> 
> 
> 
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
> 

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