[tri-med] Re: we are never going home

Hope he gets better to go home gina

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------Original Message------
From: Holly McCormick <hollyandms@xxxxxxx>
To: "tri-med" <tri-med@xxxxxxxxxxxxx>
Date: Thu, Mar 19, 2009 11:04 AM
Subject: [tri-med] we are never going home

It certainly feels that way right now.  The dr told us that Morgan is 
progressing faster than she expected, but she is being cautious weaning him off 
the vent.  He was so hard to intubate so they don't want to take him off until 
he is ready.  Dr. told us he will be on the vent for a few more days.  She 
didn't want to say how much longer the hospital stay will be.  Today more 
settings are being changed on the vent so Morgan is moving forward.  

On a side note, the dr. who was here last weekend said that he has been 
following, off and on, a girl with t18 in MS who is 18 yrs. old.  I think I 
heard them say her name is Courtney? He said they also had seen a small child, 
maybe a baby with t18, too.  One of the nurses that has been with Morgan most 
of the time has a daughter with liscencephaly, that has caused her to be 
severely disabled.  

�You have no right to argue with your Creator. You are
merely a clay pot shaped by a potter. 
The clay doesn�t ask, �Why did 
you make me this way?�� (Isaiah 45:9 CEV).



Holly ( Des Moines, IA) -- wife of Mike 
mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q 
and partial monosomy 9p 
dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
twice daily,novolog




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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