[tri-med] Re: we are never going home

Holly, I'm glad Morgan is progressing - fingers crossed you will be going
home soon.

Carolyn
Mum to Ellie, age 5, T18M

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Holly McCormick
Sent: 19 March 2009 16:05
To: tri-med
Subject: [tri-med] we are never going home

It certainly feels that way right now.  The dr told us that Morgan is
progressing faster than she expected, but she is being cautious weaning him
off the vent.  He was so hard to intubate so they don't want to take him off
until he is ready.  Dr. told us he will be on the vent for a few more days.
She didn't want to say how much longer the hospital stay will be.  Today
more settings are being changed on the vent so Morgan is moving forward.  

On a side note, the dr. who was here last weekend said that he has been
following, off and on, a girl with t18 in MS who is 18 yrs. old.  I think I
heard them say her name is Courtney? He said they also had seen a small
child, maybe a baby with t18, too.  One of the nurses that has been with
Morgan most of the time has a daughter with liscencephaly, that has caused
her to be severely disabled.  

"You have no right to argue with your Creator. You are
merely a clay pot shaped by a potter. 
The clay doesn't ask, 'Why did 
you make me this way?'" (Isaiah 45:9 CEV).



Holly ( Des Moines, IA) -- wife of Mike 
mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial
t18q and partial monosomy 9p 
dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting
levemir twice daily,novolog




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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