[tri-med] Re: was no subject, now diaphragmatic hernia at birth

Kathy
Thank you for replying, it is a great relief to hear a positive story as all I 
have heard until now has been the opposite

Denise 




________________________________
From: Kathy Hendler <misskathy2@xxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Tuesday, 19 May, 2009 10:50:05 AM
Subject: [tri-med] Re: was no subject, now diaphragmatic hernia at birth

My son has Trisomy 18 Mosaic and had a diaphragmatic hernia at birth.  We
went to Ochsner Hospital in New Orleans because they have an ECMO (baby
heart lung machine) but he was only 2 1/2 lbs and had to be 4 lbs to use it.
The doctors waited 3 days before doing surgery.  He stayed in the hospital
for 4 1/2 months, then on oxygen for 18 months.  He is now 17 years old and
doing well.  He walks, talks, and talks back.  LOL

I will be glad to answer questions about it if I can.  

Kathy - Mom to David (T18M, age 17 years)


>My unborn son has been diagnosed with trisomy 18 and a congenital
diaphragmatic >hernia and I have been told nothing can be done, he will not
be incubated to keep >him alive and there is no hope. I can find no details
of similar cases and wondered if >anyone could give me any information. 
Many Thanks
Denise 

                  Building ___ooOOoo__ Rainbows
                      www.trisomyonline.org
                  Families Helping Families On-line
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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